Autoimmune and Myopia – parallels

When I had my autoimmune disease I felt great.

Let me put that in perspective.

Before the disease, I’d suffered from a kind of chronic state of anxiety and depression, coupled with a sense of disorientation and…well it’s hard to describe, but imagine knowing you have to do something vitally important, but having no idea what it is. Live with that for long enough and it doesn’t go away, it just turns into a sort of dull psychosomatic ache.

The primary cause of my autoimmune disease was mental. I reached the incredibly bitter conclusion that I’d been wrong about life, that life had no meaning and no purpose, but my desire for meaning and purpose had harmed me on the only metric that counted: money.

My obsession with meaning had stopped me choosing a normal path in life, where I could have found some kind of career and made a reasonable amount of money. Life would be meaningless either way, but at least I could have endured the meaninglessness in a nice house instead of a small unit.

Once I concluded there was no meaning to be found in life, I actually started to feel better. I felt immediate relief from the symptoms that had plagued me for years. I’d finally dismissed the idea that there was a meaningful path to follow, so I no longer felt the desperate need to discover that path.

In fact I no longer felt anything much at all. And feeling nothing was pretty good.

If it hadn’t been for the growing immobility of my SI joints and the recurrent bouts of grinding ache and pain, I would have been pretty content.

It was thanks to my autoimmune disease that I finally clawed my way back onto the path, and rediscovered meaning in life. I couldn’t ignore the pain, and I couldn’t pretend that an autoimmune disease was something imposed on me by a blind, external reality.

So I started investigating it. I knew that I had been better off feeling meaningful misery than meaningless pain. I retraced my steps from a dull world where only money and comfort mattered, to the world I once knew – the one where I had rejected a normal path in life in favour of finding answers.

In practical terms that meant I wanted to cure my autoimmune disease. It took a lot of work, a lot of fruitless investigation. But finally I realised there were two main components to the disease.

First, it had suppressed my usual unpleasant feelings of needing to strive for some unknown goal.

Second, each flare-up was triggered by a change in my mental state, a kind of decision to focus, be more intent, and drive myself unrelentingly toward a particular material outcome.

So in order to reverse the disease I had to do two things.

I’ve mentioned in the previous post that I had to reverse the decision. I had to accept that the desired material outcome might never occur. I had to consciously embrace failure. That was the only way to stop that incredibly rigid, driven state of mind. It was the only way I could genuinely relax.

And then – counterintuitively – I had to return to those unpleasant feelings. I didn’t know if they were final, or what meaning they had. But I knew from experience that they had predated the autoimmune disease, and had disappeared when the disease first emerged.

I suspected the main cause of the disease was having suppressed those feelings, replacing them with mundane material goals.

So I tried to find those feelings again. I remembered what they were like, and although they were deeply unpleasant, I knew that they were more real than the false contentment that had come with the disease.

Myopia

If the autoimmune disease parallels myopia, then the same two principles might well apply.

Firstly, there may be a negative emotional state that was suppressed with the onset of myopic symptoms.

Second, there may be a definite decision – a change in mental state that corresponds to the suppression of those negative emotions.

Unfortunately my myopia set in long ago. I don’t have strong memories of how I felt before the myopia, and I don’t even have a clear timeline of when the symptoms emerged. I didn’t know I was short-sighted until I had an eye test.

But I do have more general memories. What I will try to do next is to see how those general memories correspond to the emotional resonance of the myopia symptoms. In other words, what is the biographical significance of the emotions that arise in connection with my short-sightedness?

Likewise, what kinds of decisions might I have made as a child or young teenager that correspond to the significance of myopia symptoms? What decisions might resonate with poor vision, or might appear to justify myopia as a kind of trade-off?

If my autoimmune experience is indicative, I should expect to feel a lot worse when those old feelings resurface. But it’s better to feel them than to blindly suppress them. A more meaningful life isn’t necessarily a more pleasant or easy life, but it is definitely worth living.

Looking for answers to refine your search

So I’ve described the first step in understanding the psychological/emotional issues that correspond to a physical illness or ailment.

It’s not a quick or easy step to take, but you have to start somewhere.

Looking at the emotional aspect of the illness is like entering a whole new domain that you’ve hitherto ignored. It’s no surprise you’ll take time to refine your understanding of it.

What I’ve done in the past with my autoimmune disease is to start searching online for people having similar thoughts. I tried it again, looking at myopia in the context of fear and vulnerability or powerlessness.

Two of the results were relevant to my search:

http://www.flowsandforms.com/myopia/

http://www.visionsofjoy.org/pdfs/Myopia-As-An-Adaptation.pdf

Neither of them is exactly right for me. That’s not the point.

The point is that they offer alternative perspectives that help me further refine my own search.

They also identify things like tension in the neck and eye muscles that definitely apply to me, but would not necessarily have come to my attention.

I went through this same process of searching for relevant information and insights with my autoimmune disease, and while I had to find my own answers in the end, it did help to have similar but different materials to draw on in my search.

I agreed with other sources that said perfectionism, stress, and a driven mentality were the cause of the pain I suffered, but I still had to find the exact combination and iteration of these qualities that triggered the flare-up of my symptoms.

Once I identified them, I was able to reverse them, by consciously accepting all the negative potential outcomes that were motivating my driven state of mind in the first place.

For example, the stress corresponded at one stage to thinking I had to do nothing but write articles. I was so focused on writing articles, I could feel my mind shift into a different mode.

The strangest thing was that it felt really good. Probably because it involved blocking out and suppressing all fears and doubts.

To overcome this state of mind I had to consciously accept that I might never write another article again in my entire life and that would be ok. I had to accept that I might live in poverty and obscurity, devoid of achievement, and that would be ok.

Obviously these were painful thoughts to accept, but accepting them neutralised the intensity that had caused my joints to become inflamed as my immune system attacked them.

I don’t know if I can make an exact parallel with myopia, but I’ll continue to examine it until I understand it as best I can.